"Being an advocate means recognizing that you and your loved ones are healthcare consumers and, as such, are owed good quality care, respect, and responsiveness.
"Being an advocate means recognizing that the squeaky wheel is often the only one that gets attention in a busy system.
"Being an advocate means fighting for what you believe is right-whether that is an extra day in the hospital or a timely report on a new set of tests. It's getting your boss to understand that you need some time off, but that you have a plan in place for meeting your responsibilities to the company.
"Being an advocate is also about getting at least one other family member to recognize that now and then you are going to need a break and they are going to have to chip in with hands-on care.
"The dictionary defines 'advocate' as both a noun and a verb. As a verb, it means 'pleading on behalf of something or someone.' A suggested synonym is the word 'support.' Using that definition, you may have long been an advocate without even realizing it."
taken from Advocating for Your Family
Standing Up for ALL Caregiving Families
By Suzanne Mintz
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Advocacy & Resources
Information & Referral: Assisting individuals and families in obtaining or using services, The Arc of the Mid Ohio Valley provides information and referrals to appropriate organizations or agencies.
Quality Assurance: The Arc of the Mid Ohio Valley monitors the quality of services through participation in the development of legislation and regulations, serving on Human Rights Committees, serving on community and state-wide boards of agencies, and participating in planning efforts for services.
The Arc of the Mid Ohio Valley works for systems change by involving staff and volunteers to identify needs for change and work to enact these changes.
There are numerous resources available to individuals with disabilities, their families, support staff, educators and the public. The key is finding the right one for your specific needs.
On the left of the page is a menu of available resources. Each resource is accompanied by a brief description and contact information. Fees, hours of operations and web information are also listed if the information is available.
If you know of a group, organization or web site that our visitors would find useful, please contact us. If you find that any of the information provided is incorrect, please let us know. We want to provide the most complete and current information possible.
Please note that the resources provided are not supported by or affiliated with The Arc of the Mid Ohio Valley unless otherwise indicated.
The Family Resource Guide is a guide to support & services for families raising children with intellectual, cognitive and related developmental disabilities.
To view the resource guide click the link below:
Family Resource Guide
In order to view the resource guide you will need to have Adobe Acrobat Reader installed. If you do not have this program or are ,unsure if you do you can download it by clicking this link:
Adobe Acrobat Reader
More Resources:
American Association on Intellectual and Developmental Disabilities (AAID)
http://www.aamr.org
Provides research, resources, policy information, effective practice techniques regarding individuals with intellectual, cognitive, and related developmental disabilities.
Res-Care Health Services *LOCAL
Multiple Locations
(304) 485-6405 main Office
Service Area: Wood county
Fees: Vary
Provides alternative living options for individuals with intellectual, cognitive and related developmental disabilities.
Social Security Administration *LOCAL
963 Market Street
Parkersburg, WV 26101
(304) 485-5809
Hours of operation: 9 a.m. - 4 a.m. Mon. - Fri.
Service Area; Wood County
Fees: None
West Virginia Children's Health Initiative Project
4190 West Washington Street
Charleston, WV 25313
(304) 485-8461
Service Area: West Virginia
Fees: None
Hours of Operation: Mon. - Fri. 9 a.m. - 3 p.m.
Provides financial assistance to children and families living with disability.
WV Dept. of Health and Human Resources (Specialized Family Care Pg) *LOCAL
400 5th Street
P.O. Box 1547
Parkersburg, WV 26101
(304) 485-5595
(800) 642-8589 Toll Free
ncasto@wvdhhr.org
Service Area: West Virginia
Fees: None
Provides support for children and adults with developmental disabilities. Services include: residential assistance, training, family assistance.
Wood Co. Senior Citizens
Adult Day Care Program *LOCAL
925 Market Street
Parkersburg, WV 26101
(304) 485-8721 Wood County
(304) 684-2680 Pleasants County
Service Area: Wood and Pleasants County
Fees: Call for fees
Provides social and recreational health activities and services in a structured, home-like environment. Provides protective setting for adults (not only seniors) who do not require 24-hour care but because of a physical or mental disability are not capable of full-time independent living.
Wood County Society *LOCAL
Dils Center
521 Market Street, Box 19
Parkersburg, WV 26101
(304) 422-7243, ext. 109
Hours of Operation: 8:30 a.m. - 4:30 p.m. Mon. - Fri.
Service Area: Wood County
Fees: None
Provides a variety of services (including special courses and assistance) to those who are disabled.
WV Assistive Technology System (TechLink) *LOCAL
C/O The Arc of Wood County, Inc.
521 Market Street, #17
Parkersburg, WV 26101
(304) 293-4692
(800) 841-8436 Toll Free
Service Area: Wood and surrounding counties.
Fees: none
Hours of Operation: Open until 5:30 p.m. Mon. - Fri.
Provides accessibility to assistive technologies for individuals with special needs.
WV Family Support Program Services
http://www.wvdhhr.org/bhhf/famsup1.asp
Building 6 Room 717
State Capitol Complex
Charleston, WV 25305
(304) 558-3295 Charleston Office
(800) 734-2319
Service Area: West Virginia
Fees: None
Hours of Operation: Mon. - Fri. 9 a.m. - 5 p.m.
Provides support and services to families who have a family member with developmental disabilities living with them regardless of income or age of person with a disability.
WV Home Fund (Home of Your Own Initiatives)
Co-Op Initiatives
999 Asylum Ave., Suite 508
Hartford, CT 06105
(860) 724-4940
(304) 624-3641
Service Area: National
Fees: Call for applicable fees
Goal of initiative is for ownership and control directly by the person with a disability.
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